Dementia is a topic that is very close to my heart. One lesser-known symptom of dementia is called confabulation, a fascinating and often misunderstood response of the brain.
When confabulation occurs, a person may be unable to access a memory or piece of information that would normally be available to them. Rather than leaving a gap, the brain automatically creates an answer or explanation.
To family members, friends, and carers, this can sometimes appear as though the person is lying. However, that is not what is happening.
The person’s brain has created a version of events that feels completely real and true to them. Because they no longer have access to the original memory, there is nothing available to challenge or correct the new version.
For example, someone living with dementia may describe their childhood in a way that differs significantly from known facts. Although others may recognise inaccuracies in the story, the person genuinely believes what they are saying.
Confabulation can be confusing, confronting and sometimes distressing for loved ones. Understanding why it happens can help us respond with greater patience, compassion and empathy.
Dementia affects each person differently, which is one reason why confabulation is not always recognised or discussed. When it does occur, it is important to remember that the person is not trying to deceive anyone. They are doing their best to make sense of a world that is gradually changing around them.
In many ways, confabulation demonstrates the remarkable ability of the brain to preserve a person’s sense of identity and emotional wellbeing, even as memory becomes impaired.
For carers and loved ones, the changing symptoms of dementia can bring feelings of frustration, sadness and gradual loss. This experience is often referred to as “the long goodbye” because changes occur slowly over time while the person is still physically present.
After more than ten years working in aged care, supporting geriatricians as a healthcare assistant, studying dementia care, and writing my book Dementia: An Unknown Adventure, I have developed a deep appreciation of the challenges faced by people living with dementia and those who care for them.
The more we understand conditions such as confabulation, the better equipped we are to respond with kindness, dignity and compassion—qualities that can make a meaningful difference in the lives of people living with dementia and their families.
Elaine Ghali is a Life Coach specialising in dementia support, grief and loss, and practical strategies for individuals and families navigating the dementia journey. For information about her services, contact OMG Life Coaching 0414 32 12 12 or for more information visit Facebook Omg Elaine.
